Chronic illness isn’t new to me. I grew up with an incredibly strong mother living with Lupus/Fibromyalgia/Arthritis. She even had both hips replaced at the same time! I know, what a badass right? One of the earliest memories I have, is trying to swing from my mom’s bed trapeze (the aid to help her sit up in bed). And quickly being told, sternly, that it was not a toy 😛. As a child, I saw glimpses of strength and resilience whenever my mom would walk without an aid, or walk instead of using a wheelchair at an amusement park. I saw my mom have good days and very bad days and because of that, I believe it contributed to developing the strong empathy I have towards others today.Read More »
Sometimes, I think I shouldn’t find being sick so hard.
I tell myself, to ‘get it together. You aren’t doing this alone. You have a great supportive boyfriend, family and friends (and now all of you online warriors! 👋🏻).’ But then my thoughts begin to spiral… ‘You don’t even have the responsibility of a child to look after yet. How will you look after them when you can barely move right now? It should not be this painful to do what most people do without much thought, like taking a shower, cooking dinner, and even just walking across the room. These are some examples of thoughts running through my head. This is chronic illness. It is a total (excuse my language)…mindfuck. You’re constantly trying to talk yourself out of these negative thoughts… because they are JUST thoughts, not reality. And it is exhausting.Read More »
I know how hard it is to keep track of your many pelvic pain symptoms and then having to try to relay them to your doctor(s). It’s like trying to put a 1000 piece puzzle together within the 10 minutes you have with them. Impossible, right? Because of this, I created I simplified symptom tracker that has helped me visually see my symptom frequency and prominence as well as allowing me to find out if my symptoms are associated with my cycle.Read More »