10 Things You Don't See with Chronic Illness

10 Things You Don’t Always See with Chronic Illness

Chronic illness isn’t new to me. I grew up with an incredibly strong mother living with Lupus/Fibromyalgia/Arthritis. She even had both hips replaced at the same time! I know, what a badass right? One of the earliest memories I have, is trying to swing from my mom’s bed trapeze (the aid to help her sit up in bed). And quickly being told, sternly, that it was not a toy πŸ˜›. As a child, I saw glimpses of strength and resilience whenever my mom would walk without an aid, or walk instead of using a wheelchair at an amusement park. I saw my mom have good days and very bad days and because of that, I believe it contributed to developing the strong empathy I have towards others today.

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Photo of laptop open to netflix

12 things to do instead of watching Netflix when you have a Chronic Illness.

I’ve become quite the couch potato since getting diagnosed with Interstitial Cystitis, Endometriosis and Fibromyalgia. Some days, it is all I’m capable of doing. However, there are some days and even parts of the day, I know I’m doing it out of pure routine and habit. There have been too many times lately that I’m stuck staring at the Netflix screen, flipping through the selection and realizing I’ve run out of options. Because of this, I thought I’d share with you some alternatives to fill your day other than a Netflix binge, that won’t require much physical exertion.

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My Fibromyalgia Diagnosis + Lupus Investigation

I was diagnosed a few weeks ago with Fibromyalgia by my Rheumatologist.

I first saw the Rheumatologist last year when my chronic bladder pain started, to see if there was something autoimmune going on, such as Lupus. My mother was diagnosed with Lupus at 18, so naturally that’s where we started to investigate, so I went in to see her doctor at a Toronto Lupus Clinic. They did a Lupus Panel last year but results were negative so I didn’t go back for a follow up and just continued the wait to see the Urologist and Endometriosis specialist. But it’s been a year since that appointment and lately I’ve been beginning to feel constant pain in my joints and muscles in different areas of my body and I rarely feel rested when I wake up from a “decent” nights sleep.So I went and after some discussion about these symptoms and the doctor doing a tender point examination to determine my pain level by applying pressure to various areas on my body, he said I’m suffering from Fibromyalgia.

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