Being organized and creating a medical binder is one of the best ways to help yourself once you’ve been diagnosed with any health condition. When you hear the words, “You have ___________” your head starts to spin. Depending on the diagnosis, medication and treatment options thrown at you; you become overwhelmed. Everything gets foggy, you have to keep convincing yourself this is your new reality.Read More »
Becoming your own medical advocate is incredibly important. Especially if your healthcare system is working against you.
When I was diagnosed with Interstitial Cystitis/Bladder Pain Syndrome last year, I expected there to be a standard treatment plan set for me, given to me by my urologist. Instead, I was sent on my way with little information about the condition, a new pill to try and a pat on my back telling me to keep doing what I was doing, and a ‘see you in 3 months’.
A lot of my current knowledge about my conditions have come from my own time put towards research, not given to me by a medical team. I purchased many books dedicated to IC and pelvic pain. I read them front to back, and spent hours on google researching the best treatments before deciding on what treatments to try first.
If you’re starting out on your journey to find relief and answers to your bladder/pelvic pain, I would highly recommend these books:Read More »