“But You Don’t Look That Sick”

“But you don’t look that sick”. I heard that for the first time, from someone I have not seen in years and to be honest, they are right. Sometimes, I don’t look sick. In fact, it’s amazing what a little concealer and blush can do. It even confuses me on the days when my face is […]

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Officially Diagnosed With Painful Bladder Syndrome

I had my new urologist appointment yesterday and it was confirmed that I have Interstitial Cystitis (IC)/Painful Bladder Syndrome (PBS) along with my pelvic floor dysfunction. He explained to me that IC was the term used for painful Hunner’s lesions in the bladder, but over the years many people (mainly women but men can get […]

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Update + IC/PBS Subtypes

I’ve been having a lot of a-ha moments this week when it comes to my illness, personal values and life in general. I think I’ve come to the part of my journey where I’m teaching myself to be able to let go of the bad energy this pain has brought me. From what I’ve read […]

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