March is Endometriosis Awareness Month

March is #EndometriosisAwarenessMonth .

Endometriosis is a chronic, systemic inflammatory disease that does not have a cure. 1 in 10 women have endometriosis, yet it is one of the least researched conditions. It is not just a reproductive organ disease. It is when tissue similar (not identical) to the lining of the uterus, is found throughout the pelvic cavity and on organs. It can cause chronic symptoms throughout the entire body, including debilitating pain, immune and endocrinological dysfunction, chronic fatigue, infertility, as well as damage to organs such as uterus, bladder, bowels, diaphragm, pelvic floor, nerves, ligaments, lungs and liver.

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Catastrophic Thinking and Chronic Pain

Last week I saw my Endometriosis Specialist where we discussed the next steps to try and ease my Endo/Adeno pain. I told him about the great pelvic pain program I’m attending where they teach you the skills needed to get through the debilitating pain and to be able to lower the volume of the pain we endure daily.

He told me that he’s been hearing great things about that program and said, “Don’t be offended when I say this but, it seems like the program is a good tool to help you reduce ‘catastrophizing’ during flares”.

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How Pelvic Floor Physiotherapy can help IC pain.

87% of IC Patients have Pelvic Floor Dysfunction (1).

I was one of the lucky cases, where the first gynaecologist I saw, referred me to Pelvic Floor Physiotherapy right away after seeing the state I was in. I was in tears, in a flare, sitting on my donut pillow in her office after she assessed me. She told me she believed I had IC/BPS and that only a urologist can confirm that diagnosis. She explained she’s seen improvement of symptoms with pelvic physiotherapy in her IC patients so she pointed me in that direction. And I’m so glad she did. Read More »