Becoming Your Own Medical Advocate

Becoming your own medical advocate is incredibly important. Especially if your healthcare system is working against you.

When I was diagnosed with Interstitial Cystitis/Bladder Pain Syndrome last year, I expected there to be a standard treatment plan set for me, given to me by my urologist. Instead, I was sent on my way with little information about the condition, a new pill to try and a pat on my back telling me to keep doing what I was doing, and a ‘see you in 3 months’.

A lot of my current knowledge about my conditions have come from my own time put towards research, not given to me by a medical team. I purchased many books dedicated to IC and pelvic pain. I read them front to back, and spent hours on google researching the best treatments before deciding on what treatments to try first.

If you’re starting out on your journey to find relief and answers to your bladder/pelvic pain, I would highly recommend these books:

  1. The Interstitial Cystitis Solution by Nicole Cozean + Jesse Cozean
  2. Heal Pelvic Pain by Amy Stein
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30 things I wish I told myself before turning 30 years old

As I lay here in bed, jotting down these points, I really don’t know if I should laugh, cry or feel proud of accomplishing what I have in the last 30 years.

It is my 30th birthday tomorrow Read More »

How Pelvic Pain Becomes Chronic Pelvic Pain: Central Sensitization

“If my doctor’s had more knowledge in pain science or chronic pelvic pain, I’m sure they would have given me the treatment needed to help me find relief and try to prevent me from developing Central Sensitization . ”

If my math is right, I’ve been living with chronic pain for over 15 years. I started feeling pelvic pain symptoms (debilitating cramps, abnormal bleeding, Vulvodynia, chronic urinary tract infections, IBS) around 13 years old.

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